tag:blogger.com,1999:blog-31911817.post5716004957195178233..comments2024-03-10T14:07:40.468-04:00Comments on Blue Rose Girls: I have LupusBlue Rose Girlshttp://www.blogger.com/profile/05224076615462128422noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-31911817.post-84692089880311546602008-10-16T10:28:00.000-04:002008-10-16T10:28:00.000-04:00Running has been really good for me. I need to kee...Running has been really good for me. I need to keep doing it even when I feel sick (crazy, but it works).<BR/><BR/>Yep, it does work, the high that endorphines (created during exercising) produce causes many a runner to become "addicted". Crazier then feeling better from a run (or even a walk) is light therapy. It really does work (as you most likely know) and it doesn't take much to sit under a grow light (don't need to pay the big bucks for those fancy "therapy" lights found in pharmacies and criminally over priced) for an hour or so and read or paint. With the Winter coming up, the short days and lack of sunshine can play havoc with our mental state. Still, keep an eye on yourself. There are times when only medication can help and there is no shame in needing a drug for any illness.Christine Tripphttps://www.blogger.com/profile/05058419743726981987noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-82241243342034007892008-10-13T13:35:00.000-04:002008-10-13T13:35:00.000-04:00Thanks guys. And yes, depression is also a danger....Thanks guys. And yes, depression is also a danger. I won't lie--getting this kind of news is DEPRESSING as hell. And that can only make things worse. Running has been really good for me. I need to keep doing it even when I feel sick (crazy, but it works).Meghan McCarthyhttps://www.blogger.com/profile/05117528918335897128noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-72297754300765718162008-10-12T21:23:00.000-04:002008-10-12T21:23:00.000-04:00Hi Meghan.I too am so sorry to hear of your diagno...Hi Meghan.<BR/><BR/>I too am so sorry to hear of your diagnosis. I've always been a big fan of yours - so, no worries I was planning on buying more of your books anyway! Sending you big cyber hugs and loads of well wishes.Debbie Meyerhttps://www.blogger.com/profile/13336400645255173433noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-2443771494128005972008-10-11T00:01:00.000-04:002008-10-11T00:01:00.000-04:00Meghan, you have always brought a chuckle into my ...Meghan, you have always brought a chuckle into my life (in a sideways sort of way:) so I am so, so sorry to hear this! I agree that it is always better when you know what the illness is, so you can then plot your plan of attack, all the same, I feel your agony and fear. Do not read into this more then it is at the moment for you. Any of us could be hit by a truck tomorrow. Be Proactive. Do NOT let it get you down before it may. At this very moment, depression might get you well before any illness can. Seek some mental health help, in what ever form is comfortable for you. We need someone to talk to that actually listens and doesn't talk back. In other words, SCREW this thing, get mad, get even... not just even, get the better of it and don't let it know your afraid!<BR/>Rooting for you here!Christine Tripphttps://www.blogger.com/profile/05058419743726981987noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-59249007651936097452008-10-10T19:46:00.000-04:002008-10-10T19:46:00.000-04:00Meghan,No pity from me. Everyone has some kind of...Meghan,<BR/>No pity from me. <BR/><BR/>Everyone has some kind of $%!#. <BR/>Some $%!# is $%!#ier than other $%!#. <BR/>I am sorry about your $%!# though. <BR/><BR/>I hope you can find the right meds! Can't wait to see Seabisquit!<BR/>~~LauraLaurahttps://www.blogger.com/profile/11826229334926225662noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-72973607709115616312008-10-10T12:32:00.000-04:002008-10-10T12:32:00.000-04:00Thanks guys. I'm a little concerned because I've a...Thanks guys. I'm a little concerned because I've already been on a high dose of Prednisone for the past 7 months and I still get flare-ups. I fear that I have a more serious case of Lupus. I was dissecting the test results and it looks like because the skin sample was taken from a non-sun exposed, non rash area (I don't get rashes) that it means I have renal or other organ involvement. The doctor didn't explain much. But now I'm on 20 mg of Prednisone and 2000 MG of Cellcept. This is a bad time to be diagnosed because my other cousin has been in the hospital for the past 3 months with Lupus and she almost died--had to have a feeding tube put in, her gall bladder removed, etc. Ugh! Scary stuff!<BR/><BR/>It's okay. That's what the bloody mary's are for. It's good to know I can have children if I want to (though it might be pure agony)<BR/><BR/>meghanMeghan McCarthyhttps://www.blogger.com/profile/05117528918335897128noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-28081756983744149162008-10-10T10:30:00.000-04:002008-10-10T10:30:00.000-04:00Hey, Meghan. So sorry to hear this....Hey, Meghan. So sorry to hear this....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31911817.post-23792433388800592232008-10-09T23:17:00.000-04:002008-10-09T23:17:00.000-04:00Soooo sorry. My nephew has lupus. You will be in...Soooo sorry. My nephew has lupus. You will be in my thoughts.Kimbra Kaschhttps://www.blogger.com/profile/16955657301998255029noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-18813043652941662112008-10-09T20:10:00.000-04:002008-10-09T20:10:00.000-04:00Hey, Meghan - I'm a long-time Longstockings reader...Hey, Meghan - I'm a long-time Longstockings reader coming out of lurkdom to wish you well as you deal with your diagnosis. I've always enjoyed your posts, and I'll be thinking positive thoughts for you.KateMessnerhttps://www.blogger.com/profile/10474241166918282375noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-90929726004173118862008-10-09T15:56:00.000-04:002008-10-09T15:56:00.000-04:00Hi Meghan,Your post popped up on my Lupus Alerts.....Hi Meghan,<BR/><BR/>Your post popped up on my Lupus Alerts... I've been diagnosed for 12 years and I still sometimes don't want to accept it, for me I can't go in the sun because it flares the lupus and then I have to go on bigger doses of meds. It's hard because I live in San Clemente by the beach and a beach lover.... I'm on small dose of prednisone, methotrexate, placquenil and celebrex and I'm doing pretty well.<BR/><BR/>You really can have kids... my last two kids I had lupus and it wasn't diagnosed but I was extra tired and achy....My advice is really work with your Dr. to get on the right meds, and adjust when symptoms change.<BR/><BR/>I'm really into oil painting, and finished landscaping (creating, not doing) our new house... When you feel well create, and when you are tired pace yourself.<BR/><BR/>I also found it took 6 months when I first was on meds to start feeling alot better.<BR/><BR/>You'll be okay... find all the good and fun in life and it will help balance the other...<BR/><BR/>good luck,<BR/><BR/>Cindycindyhttps://www.blogger.com/profile/16985455969662304556noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-17484102204298961282008-10-09T10:43:00.000-04:002008-10-09T10:43:00.000-04:00I'll take you for bloody marys!I'll take you for bloody marys!alvinalinghttps://www.blogger.com/profile/04503984086482905226noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-39752871826533485802008-10-09T09:46:00.000-04:002008-10-09T09:46:00.000-04:00Oh Meghan! I'm sorry. It must be hard to take in, ...Oh Meghan! I'm sorry. It must be hard to take in, even though it's probably better in most ways to know rather than wonder. I hope the treatment works and I hope, especially, that something helps with the extreme fatigue. I do know what you mean about that -- and it IS hard to explain or describe: "something else entirely" is a good way. I'm glad you posted this and hope you are, too.Libby Koponenhttps://www.blogger.com/profile/01508041827996196293noreply@blogger.comtag:blogger.com,1999:blog-31911817.post-54901149885419078382008-10-09T09:02:00.000-04:002008-10-09T09:02:00.000-04:00I'm so sorry Meghan. While I'm sure its a relief i...I'm so sorry Meghan. While I'm sure its a relief in some way to finally know whats wrong, thats still a big pill to swallow. I hope the treatment helps and things can get back to as close to normal as possible.Anna Alterhttps://www.blogger.com/profile/16158290821419472185noreply@blogger.com